LILAH

 

Five year old Lilah has overcome many challenges in her young life. She was born via emergency C-section because she was in distress and not breathing. Following that she was transferred to McMaster NICU where she stayed for 3 weeks. Her MRI showed extensive brain damage and Lilah was referred to Niagara Children’s Centre for Speech Language Pathology, Physiotherapy, and Occupational Therapy services.

“As a first time Mom, I was nervous about what to expect and what her therapists would tell me about my baby girl. Lilah was a fussy baby and did not sleep well. I knew she was slightly delayed with her early milestones, and had questions about what her future would look like.”

At just a few months old, Lilah started therapy at the Centre. At that time she was diagnosed with Hypoxic Ischemic Encephalopathy, her family was told that they did not know what Lilah’s future looked like, nobody knew if she would be capable of walking or talking.

Since Lilah’s initial diagnosis she has also been diagnosed with Cerebral Palsy and Epilepsy.

Today, Lilah is in SK and has found a love for music. She loves to spend time outside, do crafts, and look at books. As a little family of four (Lilah has a younger brother, Max, age 3), they love to watch movies and read books together, and also play board games. 

Lilah no longer receives OT, PT, or SLP support, but does still receive support from Dr. Stacey through the Physical Medicine Clinic and the Gait Lab. She uses the support of recreation therapy services to find inclusive activities where she can continue to grow and develop. 

“Our goals for Lilah right now are that she be able to keep up with her peers and continue to meet her milestones. We would also like her to be able to play sports and we depend on Dr. Stacey and the Centre to ensure she is doing so safely.

The Centre has been home to us for almost five years now and I can’t imagine what I would have done without the support of the amazing people I have had the good fortune to be helped by. It is in large part because of all of the support Lilah has received from her therapists that she has come as far as she has.  I can’t imagine what we would have done or where Lilah would be today without the amazing therapists and programs offered by the Centre.”

The Niagara Children’s Centre provides invaluable support services to children and families in the community. There are so many families that depend on the programs offered and the knowledgeable staff to help their children achieve their goals. 

 

 

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